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Posts Tagged ‘childhood cancer’

HOC Hero of the Week: Mattelyn “Mattie” Magill

Posted in Awards, HOC Hero of the Week, tagged , , , , , , , on May 21, 2012| Leave a Comment »

This week we would like to honor Mattelyn “Mattie” Magill, a 10-year-old fighting Acute Lymphoblastic Leukemia.

After being diagnosed in July 2011, Mattie was taken to the hospital barely breathing and in renal failure.  The Leukemic cells spread throughout her body.  She was immediately placed on full dialysis and chemotherapy.  Within one month, the doctors told Mattie and her family that she was in remission.  She spent several more months in inpatient care at the hospital, going every other week.  As she got close to her maintenance phase and no longer having to stay in the hospital, she started experiencing headaches.  Doctors told her and her family that she relapsed, the leukemia was back and the only option is a Bone Marrow Transplant and full radiation.

Mattie Magill, a 10-year-old fighting leukemia

Mattie’s Aunt Christy told us that she is still going to school and even trying to do color guard.

Mattie is a very tough little girl. I have never heard her complain about being sick or why her not  one time.  I also work at a oncology office so I do know how difficult time this is for the patient as well as the family.

Mattie’s mother has had to take a leave of absence from work and focus on helping Mattie get better.  They have a donation page where you can help contribute to their growing household finances and medical bills as they help Mattie through this difficult time.  Please visit Mattie’s Fight.

If you know a child or teen who is battling or has battled cancer and you want to nominate them for our next HOC Hero of the Week, tell us about your hero and include photos and any links to their pages so we can support them!  Fill out the nomination form here: http://hatsoffforcancer.org/nominate-hero. 


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HOC Hero of the Week: Breonia Adam

Posted in Awards, HOC Hero of the Week, tagged , , , , , , on May 15, 2012| Leave a Comment »

This week we are honoring Breonia Adam, described as an “amazing daughter”, who was diagnosed with Hypodiploid Acute Lymphoblastic Leukemia on January 5, 2010 at the age of 15.

Breonia developed complications and suffered pancreatitis and liver failure. She surprised all of her doctors when she recovered from this set-back and continued receiving chemotherapy and a stem cell transplant in July, 2010. Her older sister, Felicia, was her donor.

A year later, her arm started hurting and within 6 months, she relapsed. Her family was crushed and the doctors said there was nothing that they could do. Demanding she receive treatment, Breonia’s mother saw that she start chemotherapy. Unfortunately, they found that her spleen and liver were now full of leukemia cells and she was admitted to the hospital for the last time on February 18, 2012. On February 26, 2012, Breonia earned her angel wings from a bleed in her brain caused by the chemo and low counts.

Breonia’s mother told us:

Breonia inspired all who has heard her story, she always kept a smile on her face. Her strength and courage with all she went through was so great, nothing could ever compare to it, ever. We were determined to prove the doctors wrong, she was the 1% of ALL cases being hypodiploid.

She will always be my hero, we miss her so much and she will forever be 17. She always said she would live with us forever, she was cremated, so she will be with us forever. She also said she never wanted to be an adult and have the responsibilities–she is forever 17, like she wanted it to be like that. She would tell me she wanted to fly around with wings, and now she can do that. She said if she could go back in time and change things, she said she would not change the fact of her being sick. Her sickness opened her eyes and made her see things differently, she was so easy going and never would be serious, she never wanted to worry me at all.

Breonia was truly an amazing daughter, and I wish she was still here with us.

If you’d like to know more about Breonia, or leave her family words of encouragement, you can visit her Facebook group.

We are so honored to call Breonia our HOC Hero of the Week!

If you know a child or teen who is battling or has battled cancer and you want to nominate them for our next HOC Hero of the Week, tell us about your hero and include photos and any links to their pages so we can support them!  Fill out the nomination form here: http://hatsoffforcancer.org/nominate-hero. 

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HOC Hero of the Week: Benjamin Perry

Posted in Awards, Hat Heroes, HOC Hero of the Week, tagged , , , , , , , , , , on April 25, 2012| 4 Comments »

This week we are honoring Benjamin Perry, a 15 year-old young man who is fighting Alveolar Rhabdomyosarcoma, an aggressive type of soft tissue cancer.

Benjamin Perry

Ben’s cancer has spread into his arm and his lungs.  He starts chemo again on Thursday and hopes to have at least 1,000 likes on his Facebook page: Prayers for Benjamin Perry.  You can leave Ben words of encouragement and prayers as he begins this second round of chemo this week!

Benjamin Perry

Ben is described as a very strong person who always looks for the silver lining.

Last Thursday, he gave the doctor a high-five and said, “Let’s do this!”

Maybe we all need to see things in the eyes of a child.  Hit it head on and don’t look back.  Thank you Ben for showing your Momma many life lessons through out the past year. I love you! 🙂

So, help show Ben that you are thinking of him and sending prayers his way by “liking” his page: Prayers for Benjamin Perry!

You’re a hero to us, Ben, and to many people praying for you!

If you know a child or teen who is battling or has battled cancer and you want to nominate them for our next HOC Hero of the Week, tell us about your hero and include photos and any links to their pages so we can support them!  Fill out the nomination form here: http://hatsoffforcancer.org/nominate-hero. 

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HOC Hero of the Week: Jordynn Schoenberger

Posted in Awards, Hat Heroes, HOC Hero of the Week, tagged , , , , , , , on April 18, 2012| Leave a Comment »

This week we are honoring 17-year-old Jordynn Schoenberger.

Jordynn Schoenberger – March 2011

Jordynn was diagnosed in March 2011 with Hodgkins Lymphoma.  She  started chemotherapy and lost her hair, but never lost her fighting spirit.  Jordynn even continued going to school when she was feeling up to it in between her chemo treatments.

As one supporter commented:

Jordynn is a brave and strong young woman.  She is an inspiration to us all. I am proud to be part of her life

Jordynn Schoenberger – March 2011

After months of treatments, Jordynn’s scans came back clear and she was declared cancer free in June 2011!  Jordynn will graduate from High School this summer.

Congratulations, Jordynn!  We’re so happy to hear that you are healthy!  Check out Jordynn’s support group on Facebook.

If you know a child or teen who is battling or has battled cancer and you want to nominate them for our next HOC Hero of the Week, tell us about your hero and include photos and any links to their pages so we can support them!  Fill out the nomination form here: http://hatsoffforcancer.org/nominate-hero. 

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Get your designer t-shirt and help kids with cancer!

Posted in Awareness, Fundraiser, Media, tagged , , , , , , , on April 12, 2012| Leave a Comment »

All the Above (ATA) Clothing created a Hats Off For Cancer designer t-shirt with 100% of the profits going to our charity.  ATA creates high-quality, stylish and innovative clothing that fosters self expression.  Their motto is “Express Yourself, Change the World”.

We’re so excited to present to you our designer t-shirt made especially for Hats Off For Cancer, to help kids battling cancer!  Purchase a shirt during the month of April and you’ll get free shipping.

Buy a shirt for yourself and for your family.  Every time you purchase a shirt, you are making a difference in the life of a child battling cancer.  100% of the profits go directly to Hats Off For Cancer.

ATA CEO Cody Sudmeier with Stephanie Pratt of "The Hills" with their HOC shirts

ATA CEO Cody Sudmeier with Stephanie Pratt of "The Hills" with their HOC shirts

After you buy your shirt, take a photo and we’ll post it on our blog, web site and social media pages!

Founder Tara and ATA's Sharon proudly show off their Hats Off For Cancer t-shirts

Founder Tara and ATA's Sharon proudly show off their Hats Off For Cancer t-shirts

How do you express yourself and change the world?

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HOC Hero of the Week: Rowdy Perkins

Posted in Awards, Hat Heroes, HOC Hero of the Week, tagged , , , , , , , , , on April 10, 2012| Leave a Comment »

Cancer is a word, not a sentence. ~ John Diamond

This week we want to honor 1-year old Rowdy Perkins.  Rowdy was diagnosed with 4S Neuroblastoma at less than a month old.  He started chemo and underwent four rounds as well as two surgeries to remove remaining tumors.

Rowdy Perkins, after being diagnosed with 4S Neuroblastoma

Rowdy’s mom let us know why Rowdy is a hero:

To us Rowdy is a real hero, we have learned soo much from him in the past year.  It is sad that Rowdy’s life so far has been filled with this hell, but we know how lucky we are that he was able to battle this beast and come out smiling and HEALTHY!

I hope that Rowdy’s story will inspire a lot of people…anything is possible if we have hope! 🙂

Rowdy Perkins

Happy and healthy!   1-year old Rowdy shows off his smile!

On July 1, 2011, Rowdy ended his treatments.  His most recent scans in February came out clean!  Congratulations Rowdy!  We honor you as our HOC Hero of the Week!  Check out his CaringBridge page and leave a message for him and his family!

If you know a child or teen who is battling or has battled cancer and you want to nominate them for our next HOC Hero of the Week, tell us about your hero and include photos and any links to their pages so we can support them!  Fill out the nomination form here: http://hatsoffforcancer.org/nominate-hero. 

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HOC Hero of the Week: Logan “Logie Bear” Munro

Posted in Awards, Hat Heroes, HOC Hero of the Week, tagged , , , , , , , , , , , on April 2, 2012| 1 Comment »

This week we are honoring 1-year-old Logan Munro, affectionately known as Loganberry and Logie Bear.  Little Logan is battling a form of malignant brain cancer known as Medulloblastoma.  You can help him and his family by clicking the links at the bottom for his personal donation page!

Logan “Logie Bear” Munro

Logan was born in February, 2011 and at his three month check-up, his doctor noticed his head was large for a baby his age.  Those concerns grew when Logan was not meeting certain milestones in development.  After a brain scan and biopsies, it was determined that Logan had five tumors.  He underwent surgery in December 2011 to remove one tumor.  The others were too large and now Logan is undergoing chemotherapy to decrease the size of the others in order for the doctors to operate.

Logan “Logie Bear” Munro

According to Logan’s nominator (his cousin, Melissa):

Throughout it all, Logan continues to be a loving and happy baby. Logan is such a vibrant little boy who almost always has a smile on his face no matter what he is going through (In fact he recently was admitted to the ER and eventually isolation due to a fever and extremely low blood counts and except for when they were accessing his port, was smiling at all the nurses and doctors).  Between treatments, Logan is a happy baby who turns up the wattage on his grin when he sees his toy tow truck, watches Baby Einstein on TV or finds an adult with whom to flirt.

You can show your support for Logan via his Facebook page and donation site.  “Like” Logan’s page and show him and his family that we are thinking and praying for his health and recovery!

Logan “Logie Bear” Munro

If you know a child or teen who is battling or has battled cancer and you want to nominate them for our next HOC Hero of the Week, tell us about your hero and include photos and any links to their pages so we can support them!  Fill out the nomination form here: http://hatsoffforcancer.org/nominate-hero. 

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HOC Hero of the Week: Kamryn Schumann

Posted in Awards, Hat Heroes, HOC Hero of the Week, tagged , , , , , , , , , , on March 20, 2012| 1 Comment »

This week, we would like to honor Kamryn Schumann, our HOC Hero of the Week!  4-year-old Kamryn was diagnosed with Stage 3 Wilms’ Tumor in November 2010.

Kamryn is an inspiration to ALL those around her! She was never a victim to cancer; she fought and beat cancer, and continues to be a strong girl! Who ever said that kids can’t be teachers? Kamryn has taught me to treasure life and face challenges in a new way. She’s truly an angel here on Earth!

Kamryn shows off her Disney Princess hat sent by Hats Off For Cancer in 2011

We are happy to report that Kamryn beat cancer in June 2011, and has been cancer-free ever since!

Kamryn in 2012, showing off her big smile as a cancer survivor!

To mark this incredible news, a family friend wrote this poem for Kamryn and shared it with us:

S– Sometimes life’s obstacles become one of our greatest ife stories its true, Even though we don’t understand why things happen they way they do.

U– Understanding God’s  plan is left unknown and hard, But we cannt give up hope and let down our guard

R– Remembering that your family and friends were all near made it easier to face challenges and anything you feared

V– Voices of prayer were spoken for you, To keep you wiht God’s angels and all you went through

I– In Novemeber you faced the biggest batttle of all, But throught the whole thing you stood courageous and tall

V– Victim of cancer, is what you were not,  You stayed strong and brave in every step that you fought

O– On June 27, 2011, the best news was sent from above, For God and his angels watched over you and surrounded you wth their love

R– Reading the scan came easy for doctors as they delivered the news that day- They said you were finished and a SURVIVOR it’s true, Forever and Always!

(written by Holly Cole)

You can keep track of Kamryn’s story through her CaringBridge page.

If you know a child or teen who is battling or has battled cancer and you want to nominate them for our next HOC Hero of the Week, tell us about your hero and include photos and any links to their pages so we can support them!  Fill out the nomination form here: http://hatsoffforcancer.org/nominate-hero. 

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HOC Hero of the Week: Connor Tilney

Posted in Hat Heroes, HOC Hero of the Week, tagged , , , , , , , on March 5, 2012| Leave a Comment »

Thanks again for the many nominations of deserving children and teens who are battling or have battled cancer!

This week we chose to honor four-year old Connor Tilney.  Connor was diagnosed with Acute Lymphoblastic Leukemia last October and faces 2 years of chemotherapy.

Here are some recent photos of Connor:

Connor Tilney: HOC Hero of the Week

Connor Tilney: HOC Hero of the Week

Let Connor know you’re thinking about him and his family by visiting his Caring Bridge page.

If you know a child or teen who is battling or has battled cancer and you want to nominate them for our next HOC Hero of the Week, tell us about your hero and include photos and any links to their pages so we can support them!  Fill out the nomination form here: http://hatsoffforcancer.org/nominate-hero. 

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Alex loves her Minnie Mouse hat!

Posted in Hat Heroes, tagged , , , , , , , , , on February 10, 2012| Leave a Comment »

We received this in our inbox from Brittany!  Please check out Alex’s web site.

My niece Alexandria (Alex) loved her Minnie Mouse hat!
The following is a link to her website with her story
https://www.wepay.com/donate/178864

Thank you to our donors and supporters that make Alex’s smiles possible as she shows off her new hat.

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