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Posts Tagged ‘Hats Off For Cancer’

This week we would like to honor Max, also known as SuperMax.  Last August, SuperMax was diagnosed with brain cancer at only 4 and a half years old.  This type of brain cancer is very uncommon.  Through surgery, the tumor was partially resected.  SuperMax has been undergoing chemotherapy ever since as he fights the remaining tumor.

SuperMax prior to the diagnostic MRI in August, 2011.

Max’s mom Audra says it’s still a long road ahead, but her SuperMax is her hero.

Max shows me every day how to push harder, to be present with each day, and how not to give up. He’s a fighter, a sweetheart, and a goof-ball.

Inspired by Max, his family created Max’s Love Project where they fill their local hospital treasure chests to help other kids battling cancer.  They also donate “Cloud B’s Twilight Turtle” to kids around the country.

Max has learned the power of sharing his love and supporting his SuperBuddies, which is a tremendous gift. Every time he helps me deliver treasures, I am reminded of how proud I am of my hero and the very generous young man he’s becoming, even as he overcomes tremendous challenges himself. We’ve seen the healing power of love, first hand.

SuperMax fills treasure chests at CHOC Children’s cancer center.

SuperMax, we are keeping you in our thoughts and prayers.  You are our HOC Hero!

Keep up-to-date with SuperMax here: http://www.facebook.com/teamsupermax, and find out more about Max’s Love Project here: http://www.facebook.com/maxloveproject.

If you know a child or teen who is battling or has battled cancer and you want to nominate them for our next HOC Hero of the Week, tell us about your hero and include photos and any links to their pages so we can support them!  Fill out the nomination form here: http://hatsoffforcancer.org/nominate-hero

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This week, we would like to honor Claudia Reyes-Rios as our HOC Hero of the Week.  Claudia was diagnosed with non hodgkins lymphoma at age 11.

Her sister Maria told us how cancer was something that none of her family members ever had to deal with, until young Claudia was diagnosed and had to go through treatments.

 It was a huge blow to the entire family since the word cancer had never been associated to any family member, especially not to one as young as she was. Throughout her treatment she was a huge inspiration to us all. She never stopped smiling and at times even comforted us. She taught us about faith, courage and about not questioning God when things didn’t go the way we planned. She never doubted how much God loved her in spite of her circumstance and she inspired us to do the same.

Claudia proved to be a major inspiration for the family and is now a happy and healthy 18-year-old!

If you know a child or teen who is battling or has battled cancer and you want to nominate them for our next HOC Hero of the Week, tell us about your hero and include photos and any links to their pages so we can support them!  Fill out the nomination form here: http://hatsoffforcancer.org/nominate-hero

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This week we would like to honor our HOC Hero of the Week, John “PJ” Combs, a 16-year-old who is currently battling Acute Lymphoblastic Leukemia since he was 14.

PJ has been through a lot in his short life including more than 30 admits to the hospital, septic shock, pancreatitis, feeding tubs, upper and lower endoscopy, fevers, 50+ units of blood, 150+ units of platelets, an implanted port, IV antibiotics at home and the hospital, x-rays, ultrasounds, echo-cardiograms, having to learn to walk all over again, cranial radiation, chemo through IV, his spine and orally, and much more during the past two and a half years.

PJ is a fighter, though!

His mom, Elisabeth, said:

Doctors told me two and a half years ago that he might not live BUT he is still here and fighting so hard!

PJ never complains and tries to make everyone around him happy.

He is an inspiration to me and everyone he meets. He touches people to the deepest depths of their hearts with his strength and loving disposition.

I am his mother and he is MY hero and always will be.

To keep up to date on PJ’s fight, you can visit his CaringBridge page.

PJ, we are keeping you in our thoughts and prayers.  You are our HOC Hero!

If you know a child or teen who is battling or has battled cancer and you want to nominate them for our next HOC Hero of the Week, tell us about your hero and include photos and any links to their pages so we can support them!  Fill out the nomination form here: http://hatsoffforcancer.org/nominate-hero

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This week we would like to honor Mattelyn “Mattie” Magill, a 10-year-old fighting Acute Lymphoblastic Leukemia.

After being diagnosed in July 2011, Mattie was taken to the hospital barely breathing and in renal failure.  The Leukemic cells spread throughout her body.  She was immediately placed on full dialysis and chemotherapy.  Within one month, the doctors told Mattie and her family that she was in remission.  She spent several more months in inpatient care at the hospital, going every other week.  As she got close to her maintenance phase and no longer having to stay in the hospital, she started experiencing headaches.  Doctors told her and her family that she relapsed, the leukemia was back and the only option is a Bone Marrow Transplant and full radiation.

Mattie Magill, a 10-year-old fighting leukemia

Mattie’s Aunt Christy told us that she is still going to school and even trying to do color guard.

Mattie is a very tough little girl. I have never heard her complain about being sick or why her not  one time.  I also work at a oncology office so I do know how difficult time this is for the patient as well as the family.

Mattie’s mother has had to take a leave of absence from work and focus on helping Mattie get better.  They have a donation page where you can help contribute to their growing household finances and medical bills as they help Mattie through this difficult time.  Please visit Mattie’s Fight.

If you know a child or teen who is battling or has battled cancer and you want to nominate them for our next HOC Hero of the Week, tell us about your hero and include photos and any links to their pages so we can support them!  Fill out the nomination form here: http://hatsoffforcancer.org/nominate-hero


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We all know someone who’s life has been changed by a cancer diagnosis.  Whether a family member, close friend, co-worker or perhaps even yourself, any type of cancer is sure to turn lives upside down.

A cancer diagnosis for a child is almost unbearable to wrap one’s mind around.  Yet, many of cancer’s victims are indeed our beloved little ones.  I know first hand how such a diagnosis turns lives upside down.

Several years ago my niece, at the age of 2 was diagnosed with Leukemia.  I remember well the frantic phone call from my sister as my niece was immediately hospitalized at a children’s hospital an hour from their home.   What followed was months of painful treatments, several hospital stays,  countless doctor appointments, hair loss, and a family who’s lives had taken a dramatic turn.  The dishes in the sink, the unswept kitchen floor and the half folded laundry no longer seemed important.  All focus was now on the treatment of this little girl.

During the 2 years of this ordeal, our family was impressed and forever grateful to all those who helped and gave support whether from near or far.  From the volunteers at Denver Children’s hospital who read stories to a child too sick to leave the bed to the hospital staff who so lovingly took care of her, to friends and neighbors who for 6 months arranged dinner to be brought to the family each Wednesday, the most harrowing day of treatment.  Each and every act of love and support was a blessing and did not go unnoticed.

When Hillary began to lose her hair, although a well-known and expected side effect of chemotherapy, it was nonetheless heartbreaking to watch.  Hats had never become so important.  Especially during the winter months.  Those donated to Hillary were comforting on so many levels.

Fast forward 15 years, gratefully that little girl is now 17,  healthy and planning for the rest of her life.  Some families aren’t so lucky.

Last fall when I first heard about the Hats Off For Cancer foundation,  my neice’s experience came flashing back and the hardship seemed like just yesterday.  So I jumped at the chance to help give back just a little bit .  We here at the Sacramento Convention and Visitors Bureau began collecting new hats for children throughout the month of September.  With the help of Wells Fargo Bank and many Sacramento residents, we were able to collect over 100 new children’s hats that were donated to and gratefully accepted by UC Davis Children’s Hospital.

Thank you to Hats Off For Cancer for fascilitating this wonderful endeavor to help cancer’s youngest victims.

Alyssa Green, SCVB and http://www.sacramentokids.net

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This week we are honoring Benjamin Perry, a 15 year-old young man who is fighting Alveolar Rhabdomyosarcoma, an aggressive type of soft tissue cancer.

Benjamin Perry

Ben’s cancer has spread into his arm and his lungs.  He starts chemo again on Thursday and hopes to have at least 1,000 likes on his Facebook page: Prayers for Benjamin Perry.  You can leave Ben words of encouragement and prayers as he begins this second round of chemo this week!

Benjamin Perry

Ben is described as a very strong person who always looks for the silver lining.

Last Thursday, he gave the doctor a high-five and said, “Let’s do this!”

Maybe we all need to see things in the eyes of a child.  Hit it head on and don’t look back.  Thank you Ben for showing your Momma many life lessons through out the past year. I love you! 🙂

So, help show Ben that you are thinking of him and sending prayers his way by “liking” his page: Prayers for Benjamin Perry!

You’re a hero to us, Ben, and to many people praying for you!

If you know a child or teen who is battling or has battled cancer and you want to nominate them for our next HOC Hero of the Week, tell us about your hero and include photos and any links to their pages so we can support them!  Fill out the nomination form here: http://hatsoffforcancer.org/nominate-hero

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Cancer has touched the lives of so many people and this is one way you can be involved and help.  The campus of Central Michigan University is having a collection drive from April 16 to April 30 for Hats Off For Cancer.

Coming to campus for a baseball or softball game? Drop off a hat!  Thought of someone special that you miss or hugged a child?  Drop off a hat in their honor.

Donations may be made in honor of a cancer survivor or in loving memory of someone special.

Collection sites are available across campus at the following locations:

  • Dean’s Office (Anspach 106)
  • Faculty Personnel Services (Warriner 308)
  • Human Resources (Rowe 118)
  • Student Disability Services (Park 120)
  • Volunteer Center (UC 106), CMIC (EHS 134)
  • Broadcast and Cinematic Arts office (Moore 240)
  • Communication Disorders Office (HP 2163)

Central Michigan University cancer survivors

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Cancer is a word, not a sentence. ~ John Diamond

This week we want to honor 1-year old Rowdy Perkins.  Rowdy was diagnosed with 4S Neuroblastoma at less than a month old.  He started chemo and underwent four rounds as well as two surgeries to remove remaining tumors.

Rowdy Perkins, after being diagnosed with 4S Neuroblastoma

Rowdy’s mom let us know why Rowdy is a hero:

To us Rowdy is a real hero, we have learned soo much from him in the past year.  It is sad that Rowdy’s life so far has been filled with this hell, but we know how lucky we are that he was able to battle this beast and come out smiling and HEALTHY!

I hope that Rowdy’s story will inspire a lot of people…anything is possible if we have hope! 🙂

Rowdy Perkins

Happy and healthy!   1-year old Rowdy shows off his smile!

On July 1, 2011, Rowdy ended his treatments.  His most recent scans in February came out clean!  Congratulations Rowdy!  We honor you as our HOC Hero of the Week!  Check out his CaringBridge page and leave a message for him and his family!

If you know a child or teen who is battling or has battled cancer and you want to nominate them for our next HOC Hero of the Week, tell us about your hero and include photos and any links to their pages so we can support them!  Fill out the nomination form here: http://hatsoffforcancer.org/nominate-hero

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This week we are honoring 1-year-old Logan Munro, affectionately known as Loganberry and Logie Bear.  Little Logan is battling a form of malignant brain cancer known as Medulloblastoma.  You can help him and his family by clicking the links at the bottom for his personal donation page!

Logan “Logie Bear” Munro

Logan was born in February, 2011 and at his three month check-up, his doctor noticed his head was large for a baby his age.  Those concerns grew when Logan was not meeting certain milestones in development.  After a brain scan and biopsies, it was determined that Logan had five tumors.  He underwent surgery in December 2011 to remove one tumor.  The others were too large and now Logan is undergoing chemotherapy to decrease the size of the others in order for the doctors to operate.

Logan “Logie Bear” Munro

According to Logan’s nominator (his cousin, Melissa):

Throughout it all, Logan continues to be a loving and happy baby. Logan is such a vibrant little boy who almost always has a smile on his face no matter what he is going through (In fact he recently was admitted to the ER and eventually isolation due to a fever and extremely low blood counts and except for when they were accessing his port, was smiling at all the nurses and doctors).  Between treatments, Logan is a happy baby who turns up the wattage on his grin when he sees his toy tow truck, watches Baby Einstein on TV or finds an adult with whom to flirt.

You can show your support for Logan via his Facebook page and donation site.  “Like” Logan’s page and show him and his family that we are thinking and praying for his health and recovery!

Logan “Logie Bear” Munro

If you know a child or teen who is battling or has battled cancer and you want to nominate them for our next HOC Hero of the Week, tell us about your hero and include photos and any links to their pages so we can support them!  Fill out the nomination form here: http://hatsoffforcancer.org/nominate-hero

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This week, we would like to honor Kamryn Schumann, our HOC Hero of the Week!  4-year-old Kamryn was diagnosed with Stage 3 Wilms’ Tumor in November 2010.

Kamryn is an inspiration to ALL those around her! She was never a victim to cancer; she fought and beat cancer, and continues to be a strong girl! Who ever said that kids can’t be teachers? Kamryn has taught me to treasure life and face challenges in a new way. She’s truly an angel here on Earth!

Kamryn shows off her Disney Princess hat sent by Hats Off For Cancer in 2011

We are happy to report that Kamryn beat cancer in June 2011, and has been cancer-free ever since!

Kamryn in 2012, showing off her big smile as a cancer survivor!

To mark this incredible news, a family friend wrote this poem for Kamryn and shared it with us:

S– Sometimes life’s obstacles become one of our greatest ife stories its true, Even though we don’t understand why things happen they way they do.

U– Understanding God’s  plan is left unknown and hard, But we cannt give up hope and let down our guard

R– Remembering that your family and friends were all near made it easier to face challenges and anything you feared

V– Voices of prayer were spoken for you, To keep you wiht God’s angels and all you went through

I– In Novemeber you faced the biggest batttle of all, But throught the whole thing you stood courageous and tall

V– Victim of cancer, is what you were not,  You stayed strong and brave in every step that you fought

O– On June 27, 2011, the best news was sent from above, For God and his angels watched over you and surrounded you wth their love

R– Reading the scan came easy for doctors as they delivered the news that day- They said you were finished and a SURVIVOR it’s true, Forever and Always!

(written by Holly Cole)

You can keep track of Kamryn’s story through her CaringBridge page.

If you know a child or teen who is battling or has battled cancer and you want to nominate them for our next HOC Hero of the Week, tell us about your hero and include photos and any links to their pages so we can support them!  Fill out the nomination form here: http://hatsoffforcancer.org/nominate-hero

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